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NIA Issues RFIs for Alzheimer’s Disease Bypass Budget and on Enhancing Timely Sharing of Data

The National Institute on Aging (NIA) of the National Institutes of Health (NIH) has issued two requests for information (RFI). The first is a time-sensitive RFI, Planning for NIA’s FY 2019 Alzheimer’s Disease Bypass Budget (NOT-AG-17-005). The Institute is seeking comments and input for the Institute’s use in the Fiscal Year (FY) 2019 NIH Alzheimer’s Disease Bypass Budget (ADBB), particularly in identifying and establishing research priorities for the FY 2019 ADBB. The ADBB is congressionally mandated via the FY 2015 Consolidated and Furthering Continuing Appropriations Act. NIH is further mandated to update the ADBB annually through FY 2025. In addition to focusing on basic research on Alzheimer’s disease and related dementias (ADRD), the FY 2019 ADBB budget will also “propose support for clinical trials and other translational research, including research initiatives focusing on caregivers/caregiving to patients with AD and ADRD.” NIA is further seeking recommendations for additional research areas of emphasis and emerging research needs and/or opportunities. Comments are due March 27, 2017. More information is available in the notice.

The second RFI seeks input on Enhancing Timely Data Sharing from NIA-Funded Studies (NOT-AG-17-001) for comments and recommendations on “ways to enhance the timely sharing of high-quality data generated by NIA-funded studies.” Specifically, the Institute is seeking views “on what, if any, unique considerations exist for sharing of data from NIA-funded research on aging,” including perspectives on obstacles to sharing data experienced by investigators who collect data; successful data sharing; and investigators’ experiences related to analyzing data collected in NIA grants. Comments are due April 15, 2017.

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Posted in Issue 5 (March 7), Update, Volume 36 (2017)

National Institute on Aging Seeks Input on Timely Data Sharing

The National Institute on Aging (NIA) of the National Institutes of Health (NIH) is seeking input from the scientific community on “ways to enhance the timely sharing of high-quality data generated by NIA-funded studies.” Accordingly, the Institute has issued a request for information (RFI) (NOT-AG-17-001) regarding “unique considerations” that might exist for this research as well as what the extramural research community believes are “the primary characteristics of successful data-sharing resources and strategies.” The information received by the institute will be used to inform its future policy development. Comments are due April 15, 2017. For more information and/or to comment see the notice.

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Posted in Issue 3 (February 7), Update, Volume 36 (2017)

NIH Issues Final Genomic Data Sharing Policy

The National Institutes of Health (NIH) recently issued its final NIH Genomic Data Sharing (GDS) policy designed to promote data sharing as a way to accelerate the translation of data into knowledge, products, and procedures that improve health but also protect the privacy of research participants. (more…)

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Posted in Issue 17 (September 22), Update, Volume 33 (2014)

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